RESEARCH PAPER
Functioning of the family of a child suffering from cerebral palsy
 
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1
Health Care Institute, B. Markiewicz High Public Technological – Economic School, Jaroslaw, Poland
2
Faculty of Medicine, University of Rzeszow, Rzeszow, Poland
3
Department of Biology, Lund University, Sweden; Department of Clinical Endoscopy, Institute of Rural Health, Lublin, Poland
4
Department of Clinical Endoscopy, Institute of Rural Health, Lublin, Poland
CORRESPONDING AUTHOR
Anna Lewandowska   

Czarnieckiego 16, 37-500 Jarosław, Poland.
 
J Pre Clin Clin Res. 2012;6(1):50–53
KEYWORDS
ABSTRACT
Objective:
The aim of the research was analysis of the problems of parents with children suffering from cerebral palsy, and evaluation of the degree of change that appeared after the birth of the disabled child.

Material and Methods:
100 randomly-selected families with children suffering from cerebral palsy who lived in the Podkarpacie region of Poland. The method of diagnostic survey was used, while a questionnaire served as a research technique.

Results:
In most cases, the care of the disabled children was undertaken by the mothers (77%). On the birth of the baby, the parents reacted in different ways, the most frequent being: acceptance (24%), sadness (19%), anxiety about the child’s future (17%), disbelief (11%), shock (10%). The child’s illness did not change family relations among the majority of the examined groups – 51%), in 31% it tightened family ties, and in 18% the family relationships deteriorated.

Conclusions:
Having a baby suffering from cerebral palsy has a notable influence on one of the parents, with the mothers most often resigning from professional activity. The child’s disability worsens the financial situation of family.

 
REFERENCES (11)
1.
Czochańska J. Mózgowe porażenie dziecięce. (Children’s cerebral palsy). http://www.mp.pl/artykuly/inde... (in Polish).
 
2.
Michałowicz R. Mózgowe porażenie dziecięce. (Children’s cerebral palsy). PZWL, Warszawa 2000 (in Polish).
 
3.
Jóźwiak S. Mózgowe porażenie dziecięce – znaczący problem medyczny i społeczny. (Children’s cerebral palsy – the significant medical and social problem). Agama Publisher, civil partnership, Warsaw, Paediatric Clinic Magazine, 2000 (in Polish).
 
4.
Platt JM, Pharoah POD. The epidemiology of children’s cerebral palsy. Paediatric News Magazine, Uni-Druk Publisher, Poznan 1996, nr 1.
 
5.
Wiśniewska E, Kułak W. Psychospołeczne funkcjonowanie rodziny dziecka z porażeniem mózgowym. (Psychosocial functioning of the family of the child with cerebral palsy). Prz Pediatr. 2010; 40(4): 218- 225 (in Polish).
 
6.
Obuchowska I. The disabled child in the family. PWN, Warsaw 1993.
 
7.
Kościelska M. The face of disability. PWN, Warsaw 2000.
 
8.
Wojciechowski F. Niepełnosprawność – rodzina – dorastanie. (Disability Family Adolescence). Academic Publisher Żak, Warsaw 2007 (in Polish).
 
9.
Hornik B, Janusz-Jenczeń M. Wydolność pielęgnacyjno-opiekuńcza rodzin dzieci z mózgowym porażeniem dziecięcym. (Ability of the families with children suffered from paralysis cerebralis infantum to nursing care and control). Ann. Univ. Mariae Curie-Skłodowska Sectio D Med. 2006; 21: 406-409 (in Polish).
 
10.
Wiśniewska E. Rodzina z dzieckiem z mózgowym porażeniem dziecięcym w aspekcie teorii systemowej. (Family with child with cerebral palsy in an aspect of the systemic theory). Neurol Dziec. 2009; 18(35): 61-66 (in Polish).
 
11.
Raina P, O’Donnell M, Rosenbaum P, JBrehaut J, Walter SD, Russell D, Swinton M. The Health and Well-Being of Caregivers of Children with Cerebral Palsy. Pediatrics 2005; 115(6): 626-635.
 
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